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Community Voice Program Manager

Company: Cystic Fibrosis Foundation
Location: Bethesda
Posted on: January 21, 2023

Job Description:

The Cystic Fibrosis Foundation is a leading healthcare nonprofit organization like no other. For decades, we have been taking major steps and pioneering new ways to advance the mission to find a cure for cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care. We are the global leader in the search for a cure for cystic fibrosis and nearly every CF drug and therapy available today was made possible because of CF Foundation support. We did this not only for the close to 40,000 people living in the U.S. with CF - and the estimated 105,000 people worldwide - but for the people with CF and families who have worked tirelessly to support the mission. These achievements have required dedication and unwavering commitment from a talented team of CF Foundation employees. We promote an environment that attracts -- and retains -- a diverse group of talented people who are passionate about eradicating this disease . Join us and you will join an amazing team, devoted to our community, and our mission. Position DescriptionThe Cystic Fibrosis Foundation (CF Foundation) and its employees embrace their commitment to its core values. These core values are the pillars on which the CF Foundation stand and will continue to sustain us as we move forward.

  • Keep sight of what really matters: Our decisions are based on what is best for people with cystic fibrosis and their families.
  • Aspire for excellence in all we do: We take pride in our work. We are committed to continuous learning and improvement.
  • Stronger together: We collaborate and work together so that we can learn more and achieve more.
  • Innovate with courage: We embrace challenges. We reach beyond boundaries in pursuit of our vision.
  • Care about our people: We deeply care about each other and all who support our shared mission. We listen with respect. We support one another.We are a nonprofit, donor-supported organization that has raised and invested billions of dollars to help develop cystic fibrosis therapies that have changed the lives of people with this disease. Nearly every CF medicine available today was made possible because of Foundation support.POSITION SUMMARY The Community Voice Program Manager is responsible for the day-to-day management of the Community Voice program. This individual will enable CFF's commitment to partner with the community by consulting with key stakeholders to solicit, integrate, and coordinate community involvement. This role leads program growth strategies, program evaluation, and program communications. In addition, this role will oversee and manage three individual contributors, and will need to operate at a strategic level while also being involved in the day-to-day program management.ESSENTIAL DUTIES AND RESPONSIBILITIES:
    • Manage Community Voice program; develop and execute plans to increase awareness, utilization, and growth of Community Voice.
    • Devise and implement strategies to expand the reach of Community Voice and solicit community member input from people with diverse insights.
    • Analyze member engagement and implement strategies to maintain or increase engagement.
    • Educate and consult on strategies to engage CF community members to leverage the value of Community Voice.
    • Oversee Community Voice member training and stewardship, including referring members to Chapters.
    • Design and generation of regular impact reports; maintaining accurate program information and data and other program administration, and management tasks.
    • Oversee, coordinate, and provide quality assurance for all community insight projects across team including committee recruitment, focus groups, survey projects, and other engagement best practices.
    • Lead Community Partnerships or CF Foundation projects and initiatives.
    • Identify strategies to support CFF's principles of equity, racial justice, diversity and inclusion into programs and day-to-day job duties.
    • Develop, manage and coach a team of three individual contributors.KNOWLEDGE, SKILLS AND ABILITIES REQUIRED:
      • Bachelor's degree in related field required. Relevant experience may be accepted in lieu of education.
      • Minimum of six (6) years of related experience, including one (1) to three (3) years of management/supervisory or leadership experience.
      • Group facilitation skills.
      • Strong computer skills.
      • Ability to plan and execute effective online meetings and discussions.
      • Understanding of the basic research and drug development pipeline.
      • Knowledge of emerging strategies for patient engagement and community-based research methods.
      • Understanding of the physical and mental and holistic health manifestations of CF.
      • Advanced ability to communicate and establish effective working relationships with diverse stakeholders, including clinicians, researchers etc.
      • Ability to analyze and present qualitative and quantitative data and make data driven recommendations.
      • Ability to work effectively across departmental boundaries.
      • Ability to manage complex projects.
      • Ability to exercise good judgement in identifying risks.
      • Ability to manage staff and drive desired outcomes through staff; ability to develop team through effective coaching.REPORTING RELATIONSHIPS:
        • Reports to the Director, Connections Insights and Partnering.
        • Direct reports include a Program Coordinator and two Project Leads.WORKING CONDITIONS:
          • Standard office environment.
          • Travel , events, meetings, etc.The above is intended to describe the general content of and requirements for the performance of this job. It is not to be construed as an exhaustive statement of essential functions, responsibilities or requirements.Total Rewards: The CF Foundation is committed to offering competitive compensation (base pay and incentive), benefits, and professional development opportunities that maximize our ability to recruit, retain, reward, and motivate a highly-qualified and diverse workforce. Our comprehensive benefits package includes medical, dental, and vision coverage; generous time-off and leave policies; a holistic well-being program; health savings and flexible spending accounts; employer-provided life and disability insurance; retirement savings benefits; and a variety of work-life benefits to support employees and their family members.The CF Foundation is an equal opportunity employer that is committed to being an employer of choice, not just a good place to work, but a great and inclusive place to work. We strive to recruit and maintain a diverse workforce. Qualified applicants will receive consideration for employment without regard to race, physical or mental disability, color, religious creed, ancestry, national origin, religion, age, sex, marital status, genetic information or testing, gender identity and expression, sexual orientation or status as a Vietnam-era or special disabled veteran or any characteristic protected by law.Reasonable Accommodations: The CF Foundation is committed to providing reasonable accommodations for qualified individuals with disabilities in our job application procedures. If you need assistance or would like to request an accommodation due to a disability, please contact us at

Keywords: Cystic Fibrosis Foundation, Bethesda , Community Voice Program Manager, Executive , Bethesda, Maryland

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