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Patient Registry Analyst / Developer

Company: Cystic Fibrosis Foundation
Location: Bethesda
Posted on: January 23, 2023

Job Description:

The Cystic Fibrosis Foundation is a leading healthcare nonprofit organization like no other. For decades, we have been taking major steps and pioneering new ways to find a cure for cystic fibrosis.We are the global leader in the search for a cure for cystic fibrosis and nearly every CF drug and therapy available today was made possible because of CF Foundation support. We did this not only for the more than 30,000 people living in the U.S. with CF - and the estimated 70,000 people worldwide - but for the families who have worked tirelessly to find a cure for their loved ones living with CF.These achievements have required dedication and unwavering commitment from a talented team of CF Foundation employees. We have created an environment that attracts -- and retains -- a diverse group of talented people who are passionate about changing the face of this disease. Join us and you will partner with colleagues of varying backgrounds and expertise, all united in our mission.Job DescriptionThe Cystic Fibrosis Foundation (CF Foundation) and its employees embrace their commitment to its core values. These core values are the pillars on which the CF Foundation stand and will continue to sustain us as we move forward.

  • Keep sight of what really matters: Our decisions are based on what is best for people with cystic fibrosis and their families.
  • Aspire for excellence in all we do: We take pride in our work. We are committed to continuous learning and improvement.
  • Stronger together: We collaborate and work together so that we can learn more and achieve more.
  • Innovate with courage: We embrace challenges. We reach beyond boundaries in pursuit of our vision.
  • Care about our people: We deeply care about each other and all who support our shared mission. We listen with respect. We support one another.We are a nonprofit, donor-supported organization that has raised and invested billions of dollars to help develop cystic fibrosis therapies that have changed the lives of people with this disease. Nearly every CF medicine available today was made possible because of Foundation support.ESSENTIAL DUTIES AND RESPONSIBILITIES:
    • Has expert knowledge of the CF registry data and registry-related applications. Assists the team in development and update of SSRS reports, writing, testing and deployment of .NET applications and T-SQL scripts.
    • Analyzes, verifies, and produces registry data reports to be released to the public, care centers and other stakeholders. Has knowledge of internal data systems and tools. Tests .NET applications.
    • Gathers users' requirements and can translate them into technical requirements specification. Can check compliance of technical solution to requirements.
    • Assists in the programming and development of proprietary reporting tools to meet external user requirements.
    • Programs internal documents to facilitate and complete high priority tasks in a timely manner.
    • Documents, tracks, and manages issues, risks, including timely update of issue/risk logs, facilitating development and documenting risk mitigation plans, facilitating development and documenting issue resolution action plans, providing status on issues/risks to Senior VP of Clinical Affairs / Senior Director of Patient Registry Program.
    • Assists in creating and maintaining project planning documents and reports.
    • Supports project metrics analysis, team communication, resource planning, risk analysis, report generation, and documentation control.
    • Adheres to IS Project Management standards, policies, procedures, and methodologies.
    • Performs complete range of standard support duties by utilizing appropriate PC and web applications to prepare and distribute correspondence, status reports, minutes, numerical data, tracking of project assignments, charts, and forms in an accurate manner.
    • Maintains technical documentation.
    • Travels occasionally to provide support during meetings or conduct registry training.
    • Managing and upgrading established processes while troubleshooting and resolving data issues.KNOWLEDGE, SKILLS AND ABILITIES REQUIRED:
      • Bachelor's or master's degree in business, computer science, or related field.
      • 5-8 years of experience (with a bachelor's degree) or 3+ years of experience (with a master's degree), preferably with exposure to healthcare data.
      • Professional or academic experience in healthcare-related field preferred.
      • Technical skills allowing to do data analysis using tools such as SQL Server, Excel, Access. Knowledge of T - SQL language and .NET required.
      • Interpersonal and teamwork skills, including effective writing and verbal communication, attention to detail and organization. Demonstrated customer service skills.
      • Strong analytical, critical thinking, troubleshooting, and problem-solving skills.
      • Familiarity with data analysis software, such as PowerBI or other.
      • Ability to present complex concepts and project outcomes in a clear and effective manner to both business and technical stakeholdersREPORTING RELATIONSHIPS:
        • Reports to the Senior Director, Patient Registry Program. No direct reports.WORKING CONDITIONS:
          • Position requires working in a standard office environment. Some travel to meetings is required.
          • Normal office environment with little exposure to excessive noise, dust, and temperature.
          • No heavy lifting required.The above is intended to describe the general content of and requirements for the performance of this job. It is not to be construed as an exhaustive statement of essential functions, responsibilities, or requirements.Total Rewards: The Cystic Fibrosis Foundation is committed to offering competitive compensation (base pay and incentive), benefits, and professional development opportunities that maximize our ability to recruit, retain, reward, and motivate a highly-qualified and diverse workforce. Our comprehensive benefits package includes medical, dental, and vision coverage; generous time-off and leave policies; a holistic well-being program; health savings and flexible spending accounts; employer-provided life and disability insurance; retirement savings benefits; and a variety of work-life benefits to support employees and their family members.The CF Foundation is an equal opportunity employer that is committed to being an employer of choice, not just a good place to work, but a great and inclusive place to work. We strive to recruit and maintain a diverse workforce. Qualified applicants will receive consideration for employment without regard to race, physical or mental disability, color, religious creed, ancestry, national origin, religion, age, sex, marital status, genetic information or testing, gender identity and expression, sexual orientation or status as a Vietnam-era or special disabled veteran or any characteristic protected by law.Reasonable Accommodation: The CF Foundation is committed to providing reasonable accommodations for qualified individuals with disabilities in our job application procedures. If you need assistance or would like to request an accommodation due to a disability, please contact us at

Keywords: Cystic Fibrosis Foundation, Bethesda , Patient Registry Analyst / Developer, IT / Software / Systems , Bethesda, Maryland

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